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A Nationwide multicenter registry and biobank program for deep phenotyping of idiopathic and hereditary pulmonary arterial hypertension in Korea: the PAH platform for deep phenotyping in Korean subjects (PHOENIKS) cohort.

September 21, 2019 dna 0

Related Articles A Nationwide multicenter registry and biobank program for deep phenotyping of idiopathic and hereditary pulmonary arterial hypertension in Korea: the PAH platform for […]

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Who Are You?

September 19, 2019 dna 0
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Who Are You?

Hastings Cent Rep. 2018 11;48(6):inside front cover

Authors: Gilbert S

Abstract
At a time when our views on practically everything are polarized, there’s one thing that growing numbers of us agree on: we want genetic information about ourselves. About 15 million people have taken a direct-to-consumer genetic test, up from 4 million two years ago. Millions more are likely to give these tests as holiday gifts. Many people consider genetic findings deeply meaningful to their understanding of who they are. This information is a gift, but it is also a weight-a paradox that was the theme of a conference organized by my colleagues Erik Parens and Joel Michael Reynolds in October 2018. Genomic knowledge is a gift when, for example, it connects us with relatives whom we’re glad to meet. But it is a weight when it pigeonholes us into categories that suggest racial differences and possibly stereotypes.

PMID: 30586173 [PubMed – indexed for MEDLINE]